ToolKits For Parents

In our efforts to help parents, we have assembled here some of the tools created by other organizations that may be helpful. Profectum Foundation provides this information as a public service. Listings in this section do not imply endorsement by the Profectum Foundation, nor are we responsible for the contents.

Toolkits from Autism Speaks

As the leading autism non-profit, Autism Speaks has devoted considerable resources over the past 5 years to create tools to support parents and families of individuals with ASD. Here are some of the tools available form Autism Speaks’ Family Services.

First 100 Day Toolkit was created specifically for newly diagnosed families.
Family Support Tool Kits, a set of kits for grandparents, parents, siblings and friends.
Autism Video Glossary
Grandparents’ Guide to Autism was designed to help guide and encourage grandparents to establish positive and successful relationships with their grandchildren with ASD.

100 Day Kit for Newly Diagnosed Families of School Age Children assists families of children between the ages of 5 and 13 recently diagnosed with autism during the critical period following an autism diagnosis.
Challenging Behaviors Tool Kit provides strategies and resources to address the behaviors and situations that are quite challenging to understand and address.
Dental Tool Kit provides tips for improving oral hygiene at home, as well as information about how parents and dental professionals can make a visit to the dentist’s office less stressful and more productive.
Tips for Successful Haircuts is a companion to the Dental Toolkit that supports parents with the equally challenging visit to get a haircut.
Individualized Education Program Guide helps families understand the IEP process as their loved ones head back to school.

Transition Tool Kit was created to assist families on the journey from adolescence to adulthood.
Postsecondary Educational Opportunities Guide helps individuals with autism and their families explore the different opportunities and learning environments available after leaving high school.
Community-based Skills Assessment helps parents and professionals assess the current skill levels and abilities of individuals with autism beginning at age 12 and continuing into adulthood in order to develop a comprehensive transition plan.

Autism Speaks Employment Tool Kit helps adults with autism research, find and keep employment in the competitive labor market.
TheSpectrumCareers.com, a website that functions like Monster.com or HotJobs.com, but is designed specifically for jobseekers with ASDs and other disabilities.
Housing and Residential Supports is a toolkit and other resources for finding and securing housing and residential supports.
Catalog of Housing & Residential Services

Toolkits from other organizations

Toolkits you can give to others to help them support your child

  • Autism Spectrum Disorders – American Academy of Pediatrics (AAP) explains signs and symptoms of autism spectrum disorders.
  • School Community Toolkit – Assists members of the school community in understanding and supporting students with autism (Autism Speaks).
  • Leading the Way: Autism Friendly Youth Organizations is a guide for organizations to ensure that youth with autism have the same formative experiences through community programs that are available to their typical peers.
  • Online Curriculum for Direct Service Providers offer an online course for those who support individuals with autism in the home. This 12-week course provides parents, siblings, family members, in-home support workers, agency support providers and volunteers from the community the foundational knowledge, competencies and tools necessary to support the daily living needs of transition-aged students, young adults and adults with ASDs.

If you have found other tools that may be helpful to parents, please contact us to let us know.