Listed below are some of the organizations that may be helpful to parents as you learn more about your child(ren)’s condition and search for additional information.
If you know of other organizations that may be helpful to parents, please contact us to let us know.
Identifor was founded by the husband and wife team of Cuong Do and Lori Rickles – a mom and a dad who worry a lot about their son’s future. They teamed up with the best and brightest minds in science, education, and technology to develop a better way to identify individual abilities, skills, and interests.
Autism Speaks has grown into the nation’s largest autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. We are proud of what we’ve been able to accomplish and look forward to continued successes in the years ahead.
Autism Speaks has a vast website that hold valuable information for parents. Some of the interesting areas include:
Celebrate the Children school is one of the first schools to use the DIR® model to fulfill the requirements of the NJ Core Curriculum Content Standards. We are at an important time in the history of education as many people, including public school districts, are recognizing the needs for approaches for special needs children that look at overall development and target documented deficit areas such as abstract thinking, problem solving, independence, self-esteem, emotions, language, and social interactions in a natural and supportive setting.
Floreo is leveraging the power of Virtual Reality to develop a supplementary method of teaching social and communication skills for individuals with Autism Spectrum Disorder (ASD). Our VR learning tool is fun and engaging for the learner, while allowing a supervising adult to monitor and track the learner’s progress. Floreo is currently being used by schools, therapy practices, and parents. We are also running several research studies, including a study with the Center for Autism Research at Children’s Hospital of Philadelphia and National Institutes of Health.
STAR Institute is the premier treatment, research and education center for children and adults with Sensory Processing Disorder (SPD). This includes feeding disorders and other disorders with sensory issues such as autism and ADHD.
The Autism Society works to improve the lives of all affected by autism by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.
Autism Spectrum Connection, the Online Asperger Syndrome Information and Support (OASIS) center has joined with MAAP Services for Autism and Asperger Syndrome to create a single resource for families, individuals, and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder/Not Otherwise Specified (PDD/NOS).
First Signs is dedicated to educating parents and professionals about autism and related disorders.
The Interactive Autism Network (IAN) is an innovative online project bringing together tens of thousands of people nationwide affected by autism spectrum disorders (ASD) and hundreds of researchers in a search for answers. Individuals with an ASD and their families can share information in a secure setting to become part of the largest online autism research effort in the United States. The data collected by IAN both facilitates scientific research and empowers autism community leaders to advocate for improved services and resources. In addition, anyone impacted by an ASD can become part of IAN’s online community to stay informed about autism research and make their voices heard.
IRSF’s mission is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.